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jasonbobe disclosure [26 articles]

最近 jasonbobe さんのライブラリに追加された論文の中から タグ disclosure. You can also see everyone's disclosure.
  • Ethics of Future Disclosure of Individual Risk Information in a Genetic Cohort Study: A Survey of Donor Preferences.
    Journal of epidemiology / Japan Epidemiological Association (8 September 2008)
    by Kenji Matsui, Reidar K Lie, Yoshikuni Kita, Hirotsugu Ueshima
    posted to survey disclosure by jasonbobe on 2008-09-12 17:39:49 as **
  • Communicating the results of clinical research to participants: attitudes, practices, and future directions.
    PLoS medicine, Vol. 5, No. 5. (13 May 2008)
    by DI Shalowitz, FG Miller
    posted to disclosure elsi virtuous-circle by jasonbobe on 2008-06-04 23:07:24 as ***** along with 1 person HelenaK
  • Duty to disclose what? Querying the putative obligation to return research results to participants
    J Med Ethics, Vol. 34, No. 3. (1 March 2008), pp. 210-213.
    by FA Miller, R Christensen, M Giacomini, JS Robert
    posted to disclosure study-design by jasonbobe on 2008-04-02 21:04:36 as ***** along with 1 person PredictER
  • Is it ethical to keep interim findings of randomised controlled trials confidential?
    Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201.
    by FG Miller, D Wendler
    posted to disclosure elsi study-design by jasonbobe on 2008-04-02 20:54:06 as **** along with 1 person PredictER
  • Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
    PLoS Biology, Vol. 6, No. 3. (1 March 2008), e73.
    by Timothy Caulfield, Amy L Mcguire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha M Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
    posted to consent disclosure elsi genomics by jasonbobe on 2008-03-26 13:20:55 as read along with 2 people PredictER cntbioet
  • Issues of consent and feedback in a genetic epidemiological study of women with breast cancer.
    J Med Ethics, Vol. 29, No. 2. (April 2003), pp. 93-96.
    by MP Richards, M Ponder, P Pharoah, S Everest, J Mackay
    posted to disclosure by jasonbobe on 2008-03-01 19:40:25 as **** along with 2 people and 1 group ladygoat evoltropia CGREL
  • Offering results to research participants.
    BMJ, Vol. 332, No. 7535. (28 January 2006), pp. 188-189.
    by SD MacNeil, CV Fernandez
    posted to disclosure participatory-research partnership by jasonbobe on 2008-03-01 19:08:38 as read
  • Disclosing individual results of clinical research: implications of respect for participants.
    JAMA, Vol. 294, No. 6. (10 August 2005), pp. 737-740.
    by DI Shalowitz, FG Miller
    posted to disclosure participatory-research partnership by jasonbobe on 2008-03-01 19:04:39 as read
  • Blood, Sweat and Grants: 'Honest Jim' and the European database-right
    Genomics, Society and Policy, Vol. 1, No. 2. (2005), pp. 1-28.
    by JA Bovenberg
    posted to database disclosure international ip policy privacy by jasonbobe on 2008-02-05 16:22:57 as read
  • Research ethics and the challenge of whole-genome sequencing
    Nat Rev Genet, Vol. 2008, No. 2. (February 2008), pp. 152-156.
    by Amy L Mcguire, Timothy Caulfield, Mildred K Cho
    posted to disclosure elsi personalgenomics researchdesign study-design by jasonbobe on 2008-01-23 18:14:39 as read along with 2 people dchughes PredictER
  • DNA data sharing: research participants' perspectives.
    Genet Med, Vol. 10, No. 1. (January 2008), pp. 46-53.
    by Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman
    posted to consent data disclosure genetic privacy by jasonbobe on 2008-01-17 18:21:58 as read
  • Information Disclosure in Population-Based Research Involving Genetics: A Framework for the Practice of Ethics in Epidemiology.
    Ann Epidemiol (11 December 2007)
    by Vicki L L Kristman, Nancy Kreiger
    posted to disclosure elsi genetics by jasonbobe on 2007-12-20 21:58:33 as ***** along with 1 person PredictER
  • Disclosure of genetic information obtained through research.
    Genet Test, Vol. 8, No. 3. (2004), pp. 347-355.
    by KA Quaid, NM Jessup, EM Meslin
    posted to disclosure genetics by jasonbobe on 2007-12-20 20:49:54 as ***** along with 3 people and 1 group ladygoat cgreal PredictER CGREL
  • Certificates of confidentiality: a valuable tool for protecting genetic data.
    Am J Hum Genet, Vol. 57, No. 3. (September 1995), pp. 727-731.
    by CL Earley, LC Strong
    posted to coc compelleddisclosure disclosure discrimination genetics privacy by jasonbobe on 2007-12-13 02:17:47 as **** along with 1 person and 1 group ladygoat CGREL
  • ETHICS: Identifiability in Genomic Research
    Science, Vol. 317, No. 5838. (3 August 2007), pp. 600-602.
    by William W Lowrance, Francis S Collins
    posted to anonymity confidentiality deidentification deidentified disclosure identifiability policy privacy by jasonbobe on 2007-10-14 20:26:43 as read along with 3 people and 1 group OriginalLurch ryanraaum mfm11 clab
  • How does the collection of genetic test results affect research participants?
    Am J Med Genet A (6 July 2007)
    by David Wendler, Rebecca Pentz
    posted to disclosure genetics opinions researchdesign survey by jasonbobe on 2007-07-12 22:39:27 as read
  • Should families own genetic information? No
    BMJ, Vol. 335, No. 7609. (7 July 2007), 23.
    by Angus Clarke
    posted to data disclosure duty_to_warn family genetics genomics ownership by jasonbobe on 2007-07-07 20:21:10 as read
  • Should families own genetic information? Yes
    BMJ, Vol. 335, No. 7609. (7 July 2007), 22.
    by Anneke Lucassen
    posted to data disclosure duty_to_warn family genetics genomics ownership by jasonbobe on 2007-07-07 20:19:59 as read along with 1 person flavian_vasile
  • Communicating genetic information in the family: the familial relationship as the forgotten factor.
    J Med Ethics, Vol. 33, No. 7. (July 2007), pp. 390-393.
    by R Gilbar
    posted to confidentiality disclosure doctor-patientrelationship ethics genetics genetictesting law by jasonbobe on 2007-07-05 19:58:38 as ***** along with 1 person PredictER
  • The emergence of an ethical duty to disclose genetic research results: international perspectives
    European Journal of Human Genetics, Vol. aop, No. current.
    by Bartha M Knoppers, Yann Joly, Jacques Simard, Francine Durocher,
    posted to disclosure duty_to_warn ethics genetics research by jasonbobe on 2007-07-04 09:10:47 as *****
  • Genetic information and the family: are we our brother's keeper?
    Trends Biotechnol, Vol. 20, No. 2. (February 2002), pp. 85-86.
    by BM Knoppers
    posted to disclosure duty_to_warn ethics family genetics by jasonbobe on 2007-07-04 08:01:12 as read along with 1 person and 1 group ladygoat CGREL
  • Not wicked, perhaps, but tacky.
    Science, Vol. 297, No. 5585. (23 August 2002)
    by D Kennedy
    posted to commons disclosure information mta by jasonbobe on 2007-06-19 03:40:12 as read
  • MEDICINE: Reestablishing the Researcher-Patient Compact
    Science, Vol. 316, No. 5826. (11 May 2007), pp. 836-837.
    by Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel
    posted to consent disclosure informed by jasonbobe on 2007-06-04 23:33:42 as read
  • Compelled disclosure of health information: protecting against the greatest potential threat to privacy.
    JAMA, Vol. 295, No. 24. (28 June 2006), pp. 2882-2885.
    by MA Rothstein, MK Talbott
    posted to compelled disclosure by jasonbobe on 2007-06-04 23:26:52 as ***
  • Tiered disclosure options promote the autonomy and well-being of research subjects.
    Am J Bioeth, Vol. 6, No. 6. (c 2006)
    by MA Rothstein
    posted to disclosure by jasonbobe on 2007-06-04 23:26:18 as ***
  • Compelled authorizations for disclosure of health records: magnitude and implications.
    Am J Bioeth, Vol. 7, No. 3. (March 2007), pp. 38-45.
    by MA Rothstein, MK Talbott
    posted to disclosure by jasonbobe on 2007-06-04 23:25:55 as ***
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