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jasonbobe library [251 articles]

最近 jasonbobe さんのライブラリ (優先度順).
  • Communicating the results of clinical research to participants: attitudes, practices, and future directions.
    PLoS medicine, Vol. 5, No. 5. (13 May 2008)
    by DI Shalowitz, FG Miller
    posted to virtuous-circle elsi disclosure by jasonbobe on 2008-06-04 23:07:24 as ***** along with 1 person HelenaK
  • Personally Controlled Online Health Data -- The Next Big Thing in Medical Care?
    N Engl J Med, Vol. 358, No. 16. (17 April 2008), pp. 1653-1656.
    by Robert Steinbrook
    posted to pchr by jasonbobe on 2008-05-16 15:48:53 as ***** along with 1 person Gaetan
  • Duty to disclose what? Querying the putative obligation to return research results to participants
    J Med Ethics, Vol. 34, No. 3. (1 March 2008), pp. 210-213.
    by FA Miller, R Christensen, M Giacomini, JS Robert
    posted to disclosure study-design by jasonbobe on 2008-04-02 21:04:36 as ***** along with 1 person PredictER
  • Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience.
    Genet Med, Vol. 8, No. 6. (June 2006), pp. 354-360.
    by GM McQuillan, Q Pan, KS Porter
    posted to consent informed-consent by jasonbobe on 2008-03-10 13:55:57 as ***** along with 1 person PredictER
  • The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into health care and disease prevention?
    Genet Med, Vol. 9, No. 10. (October 2007), pp. 665-674.
    by MJ Khoury, M Gwinn, PW Yoon, N Dowling, CA Moore, L Bradley
    posted to translation translational-genomics by jasonbobe on 2008-02-11 18:30:09 as ***** along with 1 person PredictER
  • Beliefs about Genes and Environment as Determinants of Behavioral Characteristics
    Int J Public Opin Res, Vol. 19, No. 3. (1 September 2007), pp. 331-353.
    by Eleanor Singer, Toni C Antonucci, Margit Burmeister, Mick P Couper, Trivellore E Raghunathan, John Van Hoewyk
    posted to attitudes determinism opinion survey by jasonbobe on 2008-02-11 02:26:02 as ***** along with 1 person PredictER
  • Proposal for a new health record to support personalized, predictive, preventative and participatory medicine
    Personalized Medicine, Vol. 5, No. 1. (2008), pp. 47-54.
    by Z Yoediono, R Snyderman
    posted to phr by jasonbobe on 2008-01-22 01:23:53 as ***** along with 1 person PredictER
  • Information Disclosure in Population-Based Research Involving Genetics: A Framework for the Practice of Ethics in Epidemiology.
    Ann Epidemiol (11 December 2007)
    by Vicki L L Kristman, Nancy Kreiger
    posted to disclosure elsi genetics by jasonbobe on 2007-12-20 21:58:33 as ***** along with 1 person PredictER
  • Disclosure of genetic information obtained through research.
    Genet Test, Vol. 8, No. 3. (2004), pp. 347-355.
    by KA Quaid, NM Jessup, EM Meslin
    posted to disclosure genetics by jasonbobe on 2007-12-20 20:49:54 as ***** along with 3 people and 1 group ladygoat cgreal PredictER CGREL
  • Getting the data right: information accuracy in pediatric emergency medicine
    Qual Saf Health Care, Vol. 15, No. 4. (1 August 2006), pp. 296-301.
    by SC Porter, SF Manzi, D Volpe, AM Stack
    posted to allergies data phr selfreport by jasonbobe on 2007-12-10 21:25:32 as *****
  • The Value of Patient Self-report for Disease Surveillance
    J Am Med Inform Assoc, Vol. 14, No. 6. (1 November 2007), pp. 765-771.
    by Florence T Bourgeois, Stephen C Porter, Clarissa Valim, Tiffany Jackson, Francis E Cook, Kenneth D Mandl
    posted to data phr selfreport by jasonbobe on 2007-12-10 21:24:21 as *****
  • Parents as Partners in Obtaining the Medication History
    J Am Med Inform Assoc, Vol. 12, No. 3. (1 May 2005), pp. 299-305.
    by Stephen C Porter, Isaac S Kohane, Donald A Goldmann
    posted to phenotype phenotypecollection phr selfreport by jasonbobe on 2007-12-10 21:17:55 as *****
  • Advancing translational research with the Semantic Web
    BMC Bioinformatics, Vol. 8, No. Suppl 3. (2007)
    by Alan Ruttenberg, Tim Clark, William Bug, Matthias Samwald, Olivier Bodenreider, Helen Chen, Donald Doherty, Kerstin Forsberg, Yong Gao, Vipul Kashyap, June Kinoshita, Joanne Luciano, Scott M Marshall, Chimezie Ogbuji, Jonathan Rees, Susie Stephens, Gwendolyn Wong, Elizabeth Wu, Davide Zaccagnini, Tonya Hongsermeier, Eric Neumann, Ivan Herman, Kei H Cheung
    posted to semantic semanticweb translational by jasonbobe on 2007-10-06 21:04:44 as ***** along with 13 people and 1 group dansullivanblk jyuh Cortel wnpx dullhunk hpiwowar egonw suizan ibuch PredictER bmaust benfqt Gaetan Evidence-based-medicine
  • Family, kinship, memory and temporality in the age of the new genetics.
    Soc Sci Med, Vol. 61, No. 5. (September 2005), pp. 1059-1071.
    by K Finkler
    posted to family genetics by jasonbobe on 2007-07-12 22:48:21 as ***** along with 1 person PredictER
  • The new genetics and its consequences for family, kinship, medicine and medical genetics.
    Soc Sci Med, Vol. 57, No. 3. (August 2003), pp. 403-412.
    by K Finkler, C Skrzynia, JP Evans
    posted to family genetics by jasonbobe on 2007-07-12 22:48:05 as ***** along with 1 person PredictER
  • What does involving consumers in research mean?
    QJM, Vol. 94, No. 12. (1 December 2001), pp. 661-664.
    by Charlotte Williamson
    posted to citizenscience patients research researchmodels by jasonbobe on 2007-07-11 23:10:14 as *****
  • Communicating genetic information in the family: the familial relationship as the forgotten factor.
    J Med Ethics, Vol. 33, No. 7. (July 2007), pp. 390-393.
    by R Gilbar
    posted to confidentiality disclosure doctor-patientrelationship ethics genetics genetictesting law by jasonbobe on 2007-07-05 19:58:38 as ***** along with 1 person PredictER
  • The emergence of an ethical duty to disclose genetic research results: international perspectives
    European Journal of Human Genetics, Vol. aop, No. current.
    by Bartha M Knoppers, Yann Joly, Jacques Simard, Francine Durocher,
    posted to disclosure duty_to_warn ethics genetics research by jasonbobe on 2007-07-04 09:10:47 as *****
  • Duty to disclose in medical genetics: A legal perspective
    American Journal of Medical Genetics, Vol. 39, No. 3. (1991), pp. 347-354.
    by Mary Z Pelias
    posted to duty_to_warn legal by jasonbobe on 2007-06-21 03:51:00 as *****
  • Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer Registry.
    J Med Genet, Vol. 44, No. 6. (June 2007), pp. 404-407.
    by K Kohut, M Manno, S Gallinger, MJ Esplen
    posted to duty_to_warn by jasonbobe on 2007-06-21 03:47:53 as *****
  • Deliberate deceit of family members: a challenge to providers of clinical genetics services.
    J Clin Oncol, Vol. 24, No. 10. (1 April 2006), pp. 1643-1646.
    by JT Loud, NE Weissman, JA Peters, RM Giusti, BS Wilfond, W Burke, MH Greene
    posted to duty_to_warn by jasonbobe on 2007-06-21 03:46:22 as ***** along with 1 person and 1 group cgreal CGREL
  • Patient Confidentiality vs Disclosure of Inheritable Risk: A Survey-Based Study
    J Am Osteopath Assoc, Vol. 106, No. 10. (1 October 2006), pp. 615-620.
    by Edmund L Erde, Michael K Mccormack, Robert A Steer, Carman A Ciervo, Gary N Mcabee
    posted to duty_to_warn by jasonbobe on 2007-06-21 03:43:46 as *****
  • Obligations and responsibilities of epidemiologists to research subjects.
    J Clin Epidemiol, Vol. 44 Suppl 1 (1991)
    by JM Last
    posted to design epidemiology ethics research study subjects by jasonbobe on 2007-05-13 05:43:56 as *****
  • PUBLIC HEALTH: A Case Study of Personalized Medicine
    Science, Vol. 320, No. 5872. (4 April 2008), pp. 53-54.
    by SH Katsanis, G Javitt, K Hudson
    posted to personalizedmedicine personal-genomics by jasonbobe on 2008-06-07 00:39:48 as ****
  • Lost in transition: challenges in the expanding field of adult genetics.
    Am J Med Genet C Semin Med Genet, Vol. 142, No. 4. (15 November 2006), pp. 294-303.
    by MR Taylor, JG Edwards, L Ku
    posted to adult-genetics by jasonbobe on 2008-05-13 02:50:12 as **** along with 1 person andyjeanne
  • Providers' knowledge of genetics: A survey of 5915 individuals and families with genetic conditions.
    Genetics in medicine : official journal of the American College of Medical Genetics, Vol. 9, No. 5. (May 2007), pp. 259-267.
    by EK Harvey, CE Fogel, M Peyrot, KD Christensen, SF Terry, JD McInerney
    posted to survey physicians opinion education by jasonbobe on 2008-05-11 14:34:16 as ****
  • Is it ethical to keep interim findings of randomised controlled trials confidential?
    Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201.
    by FG Miller, D Wendler
    posted to disclosure elsi study-design by jasonbobe on 2008-04-02 20:54:06 as **** along with 1 person PredictER
  • Currents in Contemporary Ethics
    The Journal of Law, Medicine & Ethics, Vol. 36, No. 1. (2008), pp. 174-178.
    by Rothstein, A Mark
    posted to discrimination elsi gina legislation nondiscrimination policy by jasonbobe on 2008-04-02 20:52:15 as **** along with 1 person PredictER
  • Multiplex genetic testing. The Council on Ethical and Judicial Affairs, American Medical Association.
    Hastings Cent Rep, Vol. 28, No. 4. (g 1998), pp. 15-21.
    posted to elsi mutliplex by jasonbobe on 2008-04-02 20:34:33 as **** along with 1 person PredictER
  • ASHG report. Statement on informed consent for genetic research. The American Society of Human Genetics.
    Am J Hum Genet, Vol. 59, No. 2. (August 1996), pp. 471-474.
    posted to consent elsi by jasonbobe on 2008-04-02 20:33:19 as **** along with 1 person PredictER
  • Genetic testing and breach of patient confidentiality: Law, ethics, and pragmatics.
    Am J Obstet Gynecol (8 March 2008)
    by Howard Minkoff, Jeffrey Ecker
    posted to confidentiality duty_to_warn elsi by jasonbobe on 2008-04-02 20:31:49 as **** along with 1 person PredictER
  • Update and Analysis of the University College London Low Density Lipoprotein Receptor Familial Hypercholesterolemia Database
    Annals of Human Genetics, Vol. 0, No. 0. (0), pp. ???-???.
    by SEA Leigh, AH Foster, RA Whittall, CS Hubbart, SE Humphries
    posted to associations databases genetic-testing informatics ldlr by jasonbobe on 2008-04-01 19:50:50 as ****
  • Issues of consent and feedback in a genetic epidemiological study of women with breast cancer.
    J Med Ethics, Vol. 29, No. 2. (April 2003), pp. 93-96.
    by MP Richards, M Ponder, P Pharoah, S Everest, J Mackay
    posted to disclosure by jasonbobe on 2008-03-01 19:40:25 as **** along with 2 people and 1 group ladygoat evoltropia CGREL
  • The feasibility of online genetic testing for lung cancer susceptibility: uptake of a web-based protocol and decision outcomes.
    Genet Med, Vol. 10, No. 2. (February 2008), pp. 121-130.
    by Suzanne C O'Neill, Della B White, Saskia C Sanderson, Isaac M Lipkus, Gerold Bepler, Lori A Bastian, Colleen M McBride
    posted to dtc genetic-testing multiplex online opinions web-based by jasonbobe on 2008-02-19 16:21:47 as **** along with 1 person PredictER
  • Telling the truth about genomics.
    Commun Med, Vol. 1, No. 2. (2004), pp. 193-199.
    by R Chadwick
    posted to elsi genomics veracity by jasonbobe on 2008-02-12 20:49:53 as ****
  • Rationale, Design, and Methodology of the Women' Genome Health Study: A Genome-Wide Association Study of More Than 25 000 Initially Healthy American Women.
    Clin Chem (10 December 2007)
    by Paul M M Ridker, Daniel I I Chasman, Robert Y L Y Zee, Alex Parker, Lynda Rose, Nancy R R Cook, Julie E E Buring,
    posted to cohort genomics gwas researchdesign by jasonbobe on 2008-01-22 01:27:21 as **** along with 2 people brant PredictER
  • Research Ethics in the MySpace Era.
    Pediatrics, Vol. 121, No. 1. (January 2008), pp. 157-161.
    by MA Moreno, NC Fost, DA Christakis
    posted to consumer health medicine social-networking web by jasonbobe on 2008-01-22 01:17:38 as **** along with 3 people tnhh PredictER ejetstream
  • Public willingness to participate in and public opinions about genetic variation research: a review of the literature.
    Am J Public Health, Vol. 96, No. 11. (November 2006), pp. 1971-1978.
    by R Sterling, GE Henderson, G Corbie-Smith
    posted to genetics opinion survey by jasonbobe on 2007-12-20 20:43:48 as ****
  • "It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research.
    Am J Public Health, Vol. 96, No. 11. (November 2006), pp. 1914-1919.
    by RE Malone, VB Yerger, C McGruder, E Froelicher
    posted to cbr community elsi irb participatory-research by jasonbobe on 2007-12-20 20:35:38 as ****
  • Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.
    J Urban Health, Vol. 84, No. 4. (July 2007), pp. 478-493.
    by S Flicker, R Travers, A Guta, S McDonald, A Meagher
    posted to community crb elsi irb partcipatory-research by jasonbobe on 2007-12-20 20:31:58 as **** along with 1 person PredictER
  • Certificates of confidentiality.
    Genet Test, Vol. 8, No. 2. (2004), pp. 77-78.
    by PR Reilly
    posted to coc elsi irb policy privacy research by jasonbobe on 2007-12-13 02:30:41 as ****
  • Certificates of confidentiality: a valuable tool for protecting genetic data.
    Am J Hum Genet, Vol. 57, No. 3. (September 1995), pp. 727-731.
    by CL Earley, LC Strong
    posted to coc compelleddisclosure disclosure discrimination genetics privacy by jasonbobe on 2007-12-13 02:17:47 as **** along with 1 person and 1 group ladygoat CGREL
  • Defining human differences in biomedicine.
    PLoS Med, Vol. 4, No. 9. (25 September 2007)
    by M Brown
    posted to ancestry ethnicity race by jasonbobe on 2007-12-12 23:11:27 as ****
  • Non-reporting and inconsistent reporting of race and ethnicity in articles that claim associations among genotype, outcome, and race or ethnicity.
    J Med Ethics, Vol. 32, No. 12. (December 2006), pp. 724-728.
    by H Shanawani, L Dame, DA Schwartz, R Cook-Deegan
    posted to ancestry ethnicty race by jasonbobe on 2007-12-12 04:38:17 as ****
  • What is 'public opinion' about genetics?
    Nat Rev Genet, Vol. 2, No. 10. (October 2001), pp. 811-815.
    by Celeste Condit
    posted to genetics opinion survey by jasonbobe on 2007-11-12 15:02:18 as ****
  • Identifying genetic risk factors for serious adverse drug reactions: current progress and challenges
    Nature Reviews Drug Discovery, Vol. 6, No. 11., pp. 904-916.
    by Russell A Wilke, Debbie W Lin, Dan M Roden, Paul B Watkins, David Flockhart, Issam Zineh, Kathleen M Giacomini, Ronald M Krauss
    posted to adr genetics pgx by jasonbobe on 2007-11-11 16:40:00 as ****
  • How Risk is Perceived, Constructed and Interpreted by Clients in Clinical Genetics, and the Effects on Decision Making: Systematic Review.
    J Genet Couns (30 October 2007)
    by Stephanie Sivell, Glyn Elwyn, Clara L Gaff, Angus J Clarke, Rachel Iredale, Chris Shaw, Joanna Dundon, Hazel Thornton, Adrian Edwards
    posted to risk by jasonbobe on 2007-11-11 16:39:07 as **** along with 1 person PredictER
  • Welfare Effects of Banning Genetic Information in the Life Insurance Market: The Case of BRCA1/2 Genes
    Journal of Risk & Insurance, Vol. 74, No. 3. (September 2007), pp. 523-546.
    by J Witt, M Hoy
    posted to genetics insurance lifeinsurance policy by jasonbobe on 2007-11-01 19:02:40 as **** along with 8 people and 3 groups l-alex pereicoco joshualandis Pivo1 sjones helsley ntvandehey geoscirockhunter Personal-Information-Management ARC04 Syria
  • Living at Risk: Concealing Risk and Preserving Hope in Huntington Disease.
    J Genet Couns (18 October 2007)
    by Kimberly A Quaid, Sharon L Sims, Melinda M Swenson, Joan M Harrison, Carol Moskowitz, Nonna Stepanov, Gregory W Suter, Beryl J Westphal
    posted to discrimination genetics huntintons privacy survey by jasonbobe on 2007-10-25 20:57:03 as **** along with 1 person PredictER
  • A genetic history questionnaire-based system in primary prenatal care to screen for selected fetal disorders.
    Genet Test, Vol. 11, No. 3. (2007), pp. 291-295.
    by LA Bradley, EM Kloza, PK Haddow, LJ Beauregard, JL Johnson, JE Haddow
    posted to genetics questionnaire screening by jasonbobe on 2007-10-25 20:56:36 as **** along with 1 person carlblesius
    • 注: このページを引用する時は次のURLでどうぞ: http://www.citeulike.org/user/jasonbobe/order/to_read

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