elsiatcase Needham [1 article]

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aaas-genetic-testing-project abortion academia academia-to-industry academic academic-industry-relationships academic-life-sciences academic-science acceptance-or-refusal-of-testing access-to-health-insurance access-to-medical-information access-to-results accountability action ada addictive-disorders additional-protections adherence adherence-to-treatment adjudication admixture adolescents adoption adult-genetic-testing adult-predictive-genetic-testing adverse-selection advocacy advocacy-for-the-disabled affirmative africa african african-american african-american-attitudes-toward-predictive-genetic-testing african-american-perspectives african-americans african-american-women age-based-rationing age-risk-based-guidelines agricultural-genome-program agriculture aids alaska-natives alcoholism aldous-huxley allocation allocation-of-scientific-resources alpha-fetoprotein alpha-fetoprotein-testing altruism alzheimer alzheimer-disease alzheimers-disease ambiguity ambiguous-results american american- american-eugenics-movement american-evangelical-christians american-indian american-indians americans amniocentesis analysis ancestry ancestry- ancillary-risk-information animals anonymity-vs-utility anonymized anthropology anti-aging anti-aging-research antidiscrimination-legislation anti-microbial-resistance anxiety apoe4 application-of-population-genetics-to-forensics applied appropriate appropriate-use-of-genetic-tests arc argentina ashkenazi ashkenazi-jewish ashkenazi-jews asia assessment-of-demand assisted-reproduction assisted-reproduction-technologies assisted-reproductive-technologies assisted-suicide asthma astrobiology at-risk at-risk-children at-risk-families at-risk-pregnancy at-risk-women attitudes attitudes-of-primary-care-providers attitudes-toward-biomedical-research attitudes-toward-disability attitudes-toward-genetic-testing-and-children attitudes-toward-human-genome-project attitudes-toward-testing-minor-children authoritative authoritative- authority autism autonomy avoidance avoidant-coping-style babies barriers-to-carrier-testing barriers-to-genetic-testing-and-screening behavior behavioral-characteristics behavioral-genetics behavioral-impact-of-receiving-positive-test-result behavioral-medicine behavioral-oncology behavioral-risk-factor-counseling behavioral-risk-factors beliefs benefit benefits benefits-and-burdens-of-technology benefit-sharing bene-israel bibliography bidil binary-race-logic biobank biobanking biobanks biochemical-disorders biochemical-genetic-disorders bioetechnology bioethical-model-of-personhood bioethical-policy bioethics biogerontology bioinformatics biological biological-anthropology biological-literacy biological-science biological-sciences biologic-ties-to-children biology-education biomarkers biomedical biomedical-and-clinical-research biomedical-ethics biomedical-experts biomedical-knowledge biomedical-language biomedical-research biomedical-research-and-popular-culture biomedical-research-practices biomedical-sciences biomedicine biosocial-citizenship biotechnology black-americans blanket-consent blood-spots blunting body book-review brac1-in-historical-cultural-context brain-imaging brain-imaging-research brave-new-world brca1 brca1-2 brca1-testing brca2 breaching-confidentiality breast- breast-and-ovarian-cancer breast-cancer breast-cancer-and-gene-environment-interactions breast-cancer-genetics breast-cancer-genetic-testing breast-cancer-risk-counseling breast-cancer-screening breast-cancer-screening-practices breast-cancer-susceptibility breast-cancer-susceptibility-testing breast-cancer-susceptibility-training-protocols breast-carcinoma breast-ovarian-cancer breast-ovarian-cancer-susceptibility business-and-health camden-study canadian cancer cancer-and-genetics cancer-beliefs-and-expectations cancer-control cancer-disparities cancer-genetics cancer-genome-atlas cancer-genomics cancer-prevention cancer-prevention-and-control cancer-prevention-and-screening cancer-risk cancer-risk-assessment cancer-risk-counseling cancer-susceptibility cancer-susceptibility-testing care caregiving-and-gender carrier carriers carrier-screening carrier-status carrier-testing carrier-testing-recruitment carrier-testing-relatives cassandra-medley caste categories caucasian census-categories center-genetic- challenges-to-implementing-confidentiality chance-to-choice chemistry childhood childhood-disability children childrens-participation-in-genetic-research children-with-genetic-conditions children-with-intellectual-disabilities chimeras choice cholera chorionic cioms citizenship citizens-jury-on-genetic-testing-for-common-disorders civil-liberties class class-and-genetics client-provider-miscommunication clinical clinical-challenges clinical-decision-making clinical-genetics clinical-guidelines clinical-implications clinical-practice clinical-recommendations clinical-research clinical-settings clinical-trials clinicians clinicians-perspective clones cloning code coe cognitions cognitive-affective-patterns cognitive-social-framework cognitive-social-health-information-processing-model cohanim cohort-study collaborative-research collective-identity collective-implications-of-genetic-research collective-interests colon-cancer colon-cancer-gene-testing colorectal colorectal-cancer colorectal-cancer-gene-testing colorectal-cancer-risk commercial commercial-genetic-ancestry-tracing commercial-interests-in-medical-records commercialism commercialization commericalization common-good communal-discourse communal-narratives communal-participation-in-genetic-research communication communication-of-test-results communicative-ethics communities community community-consultation community-engagement comparative comparative-survey competency comples-diseases complex-disesases compliance compter-assisted-instruction computer-based-education computerization computers computers-freedom-privacy conference-proceedings conference-report confidentiality conflict conflict-of-interest congress congresshuman-genetics consent consent-for-future-use consent-to-familial-involvement consequences-of-using-ethnic-categories-in-genetic-research constitutional-issues constructing-genealogical-relationships-under-shadow-of-genomic-thinking construction-of-clinical-trials consumer-culture consumer-inclusion consumer-involvement-in-development-of-genetic-testing-programs consumer-perspectives consumer-protection contextual-approach-assessment-questionnaire contextual-assessment-approach contraception coping coping-strategies coping-style coping-styles cost-effectiveness cost-utility cost-utlity counseling counseling-and-education criminal-dna-databases criminal-justice criminal-responsibility critique-of-robertson-on-procreative-liberty critique-of-some-feminist-challenges-to-prenatal-diagnosis cross-cultural cross-cultural-comparison cross-cultural-miscommunication cross-cultural-research c-ship c-ship-model cultural-beliefs-and-values cultural-competence cultural-construction cultural-differences cultural-diversity cultural-factors cultural-issues culturally-diverse-populations cultural-meaning-of-amniocentesis cultural-practices-surrounding-contemporary-genetics cultural-sensitivity cultural-sensitivity-and-genetic-counseling cultural-sensitivity-and-genetic-research cultural-studies culture culture-of-medicine curriculum cybermedicine cystic-fibrosis cystic-fibrosis-carrier-screening d2-dopamine-receptor danger darwinism data data-access data-banks data-sharing-policies data-withholding data-withholding-academic-genetics daubert-vmerrell-dow-pharmaceuticals daughters death-sentence decision decision-aid decision-making decision-making-autonomy decison-making deficiencies-informed-consent-process defining-genetic-conditions-for-purposes-of-law-or-policy delay dementia department-of-energy depression designer designer-babies designer-drugs determinism developing-countries development developmental-disabilities diabetes diabetic diagnosis diagnos-of-genetic-disease diagnostic-testing difference differences differential-impact-of-genetics-on-women differential-impact-on-women digital-archive directive-genetic-counseling direct-marketing-to-consumers direct-to-consumer-marketing disabililty-rights-critique disabilities disability disability-critique-of-prenatal-testing disability-insurance disability-rights disability-rights-critique disability-rights-critique-of-prenatal-testing disability-rights-critique-of-prenatal-testing-and-selective-abortion disabled-children discimination disclosure disclosure-of-results disclosure-of-results-to-children disclosure-research-results discrete-states discrimination disease disease-illness-gender disease-suspectibililty-and distress distributive-justice diverse-attitudes-toward-prenatal-testing diverse-groups-of-women-cancer-susceptibility-testing diverse-social-ethnic-backgrounds-attitudes-toward-msaf-screening diversity dn- dna dna- dna-and-criminal-investigations dna-and-evolution dna-and-identity dna-and-identity-native-american dna-banking dna-banks dna-based-identity-testing dna-databanks dna-diagnostic-laboratories dna-files dna-files-national-public-radio-transcript dna-fingerprinting dna-forensic-databanking dna-licensing dna-patenting dna-patenting-and-licensing dna-patents dna-samples dna-sequences dna-sequencing dn-relatives doctor-patient-communication doe-elsi-funded doe-elsi-program down-syndrome down-syndrome-affected-births draft-language drug-labels drug-pricing drug-response drugs duty duty-to-inform duty-to-warn dysfunction early-diagnosis early-intervention-programs early-phase-gene-transfer-trials economic-evaluation economic-implications economic-validity-of-thresholds-based-on-age-or-risk education education- educational-resource educational-resources effect effect-of-non-directive-counseling-on-families-and-patients egalitarian egg-donation electronic-audience-response-system electronic-resource elsi elsi-implications elsi-issues elsi-working-group embryo-research embryo-screening embryo-selection emergency-research emotional-reaction-to-test-results emotions emotions-and-medical-decision-making empirical-research-on-informed-consent employer-access employment employment-discrimination end-of-life engineering enhancement environment environmental-contributors -epidemiologic-studies epidemiology essentialism est ethcial-issues-and-neuroimaging ethical ethical-and-legal-issues ethical-and-practical-implications ethical-and-social-implications ethical-framework ethical-issues ethical-legal-implications-of-pharmacogenomics ethical-legal-social-implications ethical-legal-social-issues ethical-practices ethical-social-legal-implications ethical-social-political ethical-social-political-implications ethics ethncity ethnically-diverse-sample ethnic-cultural-issues ethnic-identity ethnicity ethnicity-and-attitudes-toward-genetic-testing ethnicity-and-eugenics ethnicity-and-genetic-counseling ethnicity-and-medical-care ethnicityrace ethnobiology ethnocultural ethnocultural-diversity ethnograhy ethnographic-fieldwork ethnography eugencis eugenics europe euthanasia evolution evolutionary-theory experience experiences experience-with-people-with-disabilities experiential experimental-method-of-public-consultation experts factors-predicting-test-uptake-attitudes fact-sheets fair-distribution-of-benefits faith false-positives familial-disclosure familial-risk families family family-communication family-decision-making family-dynamics family-functioning family-history family-issues family-medicine family-members family-nursing family-relations family-relationships family-studies family-values fatalism federally-mandated-categories federal-policy federal-rehabilitation-act feeling-rules feminism feminist fetal fetal-diagnosis fetal-rights fetus fetuses files focus- focus-group focus-group-methodology follow-up for forensic-dna-analysis forensic-dna-data-banking forensic-dna-testing forensic-genetics forensics for-profit forum-proceedings fragile-x-syndrome framing-effect frankenstein french funding funding-for-diseases-that-primarily-affect-developing-countries future gametes gaucher-disease gay-gene gender gender-and-genetics gender-class-and-ability-differences gender-differences gender-differences-and-cystic-fibrosis gender-differences-and-genetics gender-differences-genetic-technologies gender-equality gender-justice gender-justice-in-genetics gender-politics gender-race-and-media gender-selection gene gene-as-cultural-icon gene-chips gene-doping gene-environment-interactions gene-mapping gene-patenting gene-patents genes genes-and-diabetes gene-sequencing gene-therapy genetic genetic- genetic-alliance genetically-defined-syndromes-and-conditions genetically-tailored-treatment genetic-ancestry-tracing genetic-applications genetic-basis-of-difference genetic-cancer-risk genetic-carrier-screening genetic-contribution-to-complex-diseases genetic-contributors genetic-counseling genetic-counseling-training genetic-counseling-training-programs genetic-counselors genetic-databases genetic-defenses genetic-determinism genetic-diagnoses genetic-diagnosis genetic-diagnosis-in-asymptomatic-individual genetic-diagnostic-technologies genetic-discourses genetic-discoveries genetic-discrimination genetic-diseases genetic-disorders genetic-diversity genetic-education genetic-engineering genetic-engineering-human genetic-enhancement genetic-equality genetic-essentialism genetic-exceptionalism genetic-explanations genetic-explanations-of-stratification genetic-family-studies genetic-genealogy genetic-identity genetic-information genetic-information-and-duty-to-warn genetic-information-in-court genetic-interventions genetic-knowledge genetic-literacy genetic-markers genetic-medical-conditions genetic-medical-outreach-services genetic-medicine genetic-modification-of-preimplantation-embryos genetic-outreach-services genetic-patenting genetic-predisposition-to-cancer genetic-privacy genetic-privacy-act genetic-reductionism genetic-research genetic-research-oversight genetic-research-participants genetic-research-regulation-of genetic-revolution genetic-risk genetic-risk-assessment genetic-risk-factors genetics genetics-and genetics-and- genetics-and-applied-ecology genetics-and-behavior genetics-and-cancer genetics-and-culture genetics-and-history genetics-and-identity genetics-and-identity-dna-genetics-and-family-stories genetics-and-justice genetics-and-law genetics-and-media genetics-and-policy genetics-and-popular-culture genetics-and-public-health genetics-and-race genetics-and-social-behavior genetics-and-social-policy genetics-and-society genetics-and-technology genetic-screening genetic-screening-newborn genetic-screening-programs genetics-education genetic-selection-of-offspring-characteristics genetic-sequencing genetic-services-guidelines genetic-services-providers genetics-exeptionalism genetic-signature genetics-in-primary-care-practice genetics-professionals genetics-research genetics-training-programs genetic-susceptibility genetic-susceptibility-and-cancer genetic-susceptibility-research genetic-susceptibility-testing genetic-technologies genetic-technology genetic-testing genetic-testing-adult genetic-testing-and-breast-cancer genetic-testing-and-family-relations genetic-testingdepression genetic-testing-forensic genetic-testing-predictive genetic-testing-programs genetic-tests genetic-therapy genetic-variation genetic-variation-research genetic-vectors gene-transfer gene-transfer-research genogram genographics-project genome genome-research genomic genomic-medicine genomic-patent genomic-research genomics genomics-education genotype genotype-phenotype-studies geriatric-care geriatrics germline germline-gene-therapy germline-mutation gestational-ties globalization government-funding government-oversight government-sponsored-research graduate-education grounded-theory group group-interests group-privacy group-risk group-risks groups guidance-document-language guidelines guidelines-for-prenatal-diagnostic-testing guthrie-cards haart haemochromatosis hap-map-project harms harm-to-offspring hawaiian health health-advocates health-attitudes health-behavior health-behaviors health-beliefs health-care health-care-costs health-care-crisis health-care-reform health-care-service-delivery health-disparities health-education health-insurance health-law health-policy health-psychology health-research